How well can the privacy of research subjects be protected when their data are being sold to other institutions?”

Susan Gilbert, editor of the Hastings Center blog Bioethics Forum, asked readers in October: “How well can the privacy of research subjects be protected when their data are being sold to other institutions?”….
First to answer the call was science librarian Alyson Gamble from New College of Florida and USF Sarasota-Manatee, whose essay referred to the Nuffield Council on Bioethics’ priorities for ethical governance: “accounting for norms of access and disclosure to data, respect for individual values and interests, and professional conduct being governed in the public interest.”